Explain Experience Resources

How do I explain my experience of colitis to others?

Colitis affects everyone differently, and finding the right words to explain your experience can be difficult. The resources on this page can help you talk about your symptoms, challenges, feelings, and support needs, or be shared with others to improve understanding and support.

This CCUK guide helps you talk to healthcare professionals in appointments and offering self-advocacy advice.

This CCI resource helps you prepare for appointments, ask questions, and take an active role in your care.

This CCUK resource helps you understand commonly used medical terms, so you can use them confidently when talking about your colitis.

This CCUK guide can help you decide what you want to share with your employer.

This CCUK toolkit helps you explain how colitis affects your daily life and get the understanding and support you need.

This CCI resource can help the people around you better understand Crohn’s or Colitis and learn how to offer support in a respectful and helpful way.

This CCUK-funded research resource can help people working with young people with colitis better understand the challenges and where they can support you.

This CCUK resource can help the people close to you better understand what it is like to live with colitis and how they can support you.

This app from CCUK & Takeda simulates what it is like to have colitis or Crohn's for 24 hours, allowing others to experience it first hand.

This CCUK-funded research resources can help young people tell their friends about their colitis.